We have been bringing this to the attention of our local MSP,s and getting it spoken about within the government.

I had a meeting with Mary Scanlon MSP on the 12 July 2005 during which she told me that since we started to raise awareness about this anti-map treatment that it is now on the National Agenda and that means that it is being discussed throughout the government and will be until it is sorted.

The main point to be made is that the anti-map treatment is now and has been available on the NHS fully licenced and proven to work on the majority of folk that it was tried on.

The subjects that the anti-map treatment were tried on were Chronic Crohn's sufferers that had failed to respond to all other treatments and were facing the irreversible stoma op and would be left with the bag on the side.

But instead they were given the chance of this anti-map treatment.

So why is it that the doctors and surgeons don't give Crohn's sufferers the opportunity of this treatment now?

This has been available since about 1997 I cant help wondering how many folk's have had the stoma op since then without being given the chance of the anti-map treatment first.

This is JHT,s Contact details I have spoken to him several times and he says that any one can contact their doctors /surgeons about the anti-map treatment and he will help them all he can on the phone.

But he says don't take no for an answer you are entitled to the treatment and it is there on the NHS.

Professor John Hermon-Taylor,
Department of Surgery,
St. George's Hospital Medical School,
Cranmer Terrace,
LONDON SW17 ORE. U.K.
Tel: +44 (0) 20 8767 7631
Fax: +44 (0) 20 8725 3594
e.mail: jhermon@sghms.ac.uk

This is a link to some before and after photo's they are a bit shocking but not as shocking as no one being given the treatment.
I wish you all well Regards Roddy Flett

http://www.shafran.net/crohn/Endoscopic.htm

on July 03 2005 01:00:32 ·